A year in review

I keep seeing these 2016 dumpster fire memes.  I feel lucky to say that that wasn’t completely the case for me.  While school and mental health kept me from blogging often, I experienced quite a bit this year.  So, here’s a quick review of 2016:

January – A fairly quiet month.  My husband’s beloved Ford Ranger finally died for good which left us as a one car household for a bit.  One of my idols – David Bowie- passed away.  It was cold, a lot.

February- After several pushed off coffee dates one of my best friends, the woman who has been in my life for 25 years, called me.  Which terrified me – we hardly ever talk on the phone.  She asked me to be a bridesmaid in her wedding in the summer.  I, of course, accepted.  We also went bridesmaid dress shopping this month.
At the end of the month my car died… leaving us without a car for a few days.  Talk about a humbling experience.  I realized how much I take for granted having my own reliable transportation.
I also got to meet author Rainbow Rowell and her her speak!  I have a post here that explains why this was so huge for me – not only meeting one of my favorite authors of all time, but also overcoming my anxiety to go alone.

unnamed

March- March 1st my husband and I went to a car dealership where a friend works to talk about maybe, possibly leasing a used car.  We drove off the lot that night in my first ever brand new car – a 2016 Kia Forte that we named Fiona.

newcar

I got to meet Author Markus Zusak and here him speak!  One of my all time favorite book is The Book Thief.

zuzak

April – I got another new tattoo bringing my total to three at that time.  This time it was the stars in the Harry Potter books on my foot.

pottertat

My grandmother, my last living grandparent, passed away at the age of 102.

May- The bridal shower for my best friends wedding took place early in the month, it was a surprise shower and went off quite well!

June – Wedding day!  The wedding was perfect and beautiful!

wedding

The Cleveland Cavs won a championship and our city went NUTS.  It was so amazing to watch it happen (granted I watched on TV).  Cleveland also had a huge victory parade!

July – I got another new tattoo, this time a bookish theme.

booktat

I also, for the first time in my life, dyed my hair a non natural color, purple.  Not the whole thing, but enough that it was noticeable and I LOVED it. Also cut it way shorter.  LOVE.

purplehair

I turned 34 on the 31st.

August – Went to my first burlesque show, ever.  Even better was that a dear friend was performing and I was able to go with some amazing friends.

burlyshow

This was a rough month.. major tragedy struck one of my best friends.  However, I am happy I was able to be there for her.

September- I learned my own level of capability when once again, I was left without a co-teacher for a bit (which started back in August).  However, through some great teamwork I made it through Meet the Teacher night in one piece.

October – I met my childhood writing icon… R.L. Stine.

rlstine

I participated in the Out of the Darkness Walk with some amazing friends.

outofthedarkness

I also went on a great pumpkin and apple picking adventure with my darling husband.

pumpkins

November- Another new hair style.  A bit shorter and darker with teal. Election day.  Much sadness.  Enough said.

December – Christmas festivities and a fun game night for a friend’s birthday.Christmas break – nine full days off wok.  Always nice.

And there you have it.  My 2016 year in review.  At lest some main points.  I plan to update in the next few days about my goals and word for 2016.  So, until then.

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Spoonie.

Today was a big day, y’all.  I got my first tattoo.  And, to make it even more special two of my dearest friends were there with me and got tattoos as well.  We all got spoon tattoos.

Spoons?  What?!
Yes, spoons.

Let me start at the beginning, at least for my story.  I’m sure you’ll read this and wonder what the hell it has to do with spoons… but hang in there, it’ll all make sense soon.
I am 32 years old (nearly 33) and live daily with chronic, invisible illnesses that are both physical and mental.  From my teenage years I struggled with depression.  Anxiety came along for the ride when I was in college.  When I was 18 (my first year of college) I had emergency surgery to remove my appendix, when they cut me open it turned out my appendix was fine but I had a huge cyst on my ovary that was pushing all of my organs out of the way.  After many years of cysts and other not so pleasant issues, I was finally diagnosed with PCOS in July of 2009.  In my mid to late 20’s I started to notice that I always hurt.  I started to have sleep issues.  I honestly didn’t think much of it at first.  Then, it just became a part of my life… I didn’t think much about it until I started having severe chest pain in February 2014.  I went to my doctor who said it was costochondritis (an inflammation of the cartilage that connects a rib to the breast bone).  Since it was a new thing for me my doctor asked questions and checked some pressure points.  He told me he felt something wasn’t right and wanted to rule out RA and Lupus.  So I had plenty of blood drawn.  A few days later he called me to tell me that,thankfully, I did NOT have RA or Lupus.  However my blood showed a very high level of the marker for inflammation and he was positive I had fibromyalgia based on my symptoms and that blood test.

So, here we are.  I’m sick. I don’t generally say that, but it is what it is.  I spend my days fighting for my health in ways not many can understand.  I am always tired.  I always hurt.  I can have really bad days. Each flare is different – I never know what fun symptoms will pop up or how a fibro flare may affect my body to cause issues with my other illnesses. I have moments where I get so frustrated that I don’t have a ‘normal’ body that does what it’s supposed to. I sometimes take my pain and frustration out on those closest to me, but I never intend to.  I keep a lot of it to myself with those outside of my close circle for various reasons.
The real bitch? I usually don’t “look” sick, which throws a lot of people off and even has led to people saying that I’m not really sick or that I just need to “suck it up”. Those words hurt and they make fighting with my own body even harder at times because when I struggle I fear speaking up because I don’t want to be looked at in *that* way.  The way people look at others that they don’t believe or, even worse, pity.

So, what do spoons have to do with all of this?

In doing my research on fibro I came across But You Don’t Look Sick.com where  Christine Miserandino wrote this amazing piece on what it is to be a spoonie, that is someone who lives with an illness that is chronic and often times invisible.  We don’t look sick, but we are.   The idea is that we start each day with a limited number of spoons and each activity we do costs us spoons.  Some days, often times many days, we run out of spoons before our day is done.  We have to think long and hard before we do something out of the norm for us.  Sometimes it can take days to fully recover from even something as seemingly simple as a shopping trip.

So, I am a spoonie.  I measure my days in spoons the way a person would count out spoons for a fancy dinner party to assure they have enough for everyone.  Some days are fantastic and full of energy, but often times and especially as of late, I can barely get myself to do what HAS to be done (work things, school work) let alone things that should be done (cleaning my house, cooking healthy meals).  In my case it seems like my list is linked together in some way… both PCOS and Fibro can cause depression and anxiety.  There are small studies that have shown a link between chronic pain illnesses and endocrine disorders (such as PCOS).

It’s not easy to live with a chronic illness of any type.  I’d imagine it’s not easy to live with someone who has a chronic illness, either.  My husband and good friends should be canonized as saints for dealing with me.  Seriously.

spooniegirl(image is my spoon tattoo taken right after it was completed)

So, aside from showing support for the spoonie community we got our spoon tattoos so that we will always and forever have an extra spoon when needed.

I am absolutely in love with mine.  I also think I have opened a crazy new obsession – tattoos.

spoonietrio(image is a collage of tattoos done today – my two friends and myself)